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The goal of the PFFDvsg is to be a PFFD information source and a 'virtual support group' for parents of children with the PFFD birth defect. PFFD is a rare birth defect that affects only a small percentage of newborns, but nobody should have to face it alone. Please come here to learn about PFFD and to get strength and encouragement from other parents of PFFD children.
PFFD stands for Proximal Femoral Focal Deficiency. It sounds very complex, but when you look at each word individually it is actually a very good description of the condition.
In other words, the end of the thigh bone closest to the hip is too short or not completely developed.
More information is available in the PFFD Information section.
If we were professionals, this is where you'd read our mission statement or our corporate background, but since we're just amateurs we'll call it the 5 W's section. To avoid boring those who aren't interested, we've kept the Who, What, Why, Where and When on a separate page.
03/08/05 - Added a link to Caroline's WONDERFUL site about growing up with PFFD.
02/05/05 - Another PFFD parent has started PFFDvsg2 at www.pffd.org.
I'll keep this site online, but please be sure to check the new site for most current information.
PFFDvsg2 has some great features like:
PFFDvsg2 requires you to create an account, but it does
not ask for any personal info like our yahoogroups requires.
It also allows you to post guestbook style comments without revealing your
e-mail address to spammers like our current guestbook does.
Please check out PFFDvsg2 at www.pffd.org and let us know what you think. Thanks.....Mike
04/13/03 Added Milena's Story to the Virtual Support Group (Outside USA Section).
04/13/03 Added Andrew's Plight to to the Virtual Support Group.
01/23/03 Added Guestbook Archive for 2002.
01/22/03 Added PFFD Research by Janet to Info page.
Last updated 02/5/05. See Change Log for a complete list of changes.
Click to join PFFDvsg Yahoo Mailing List
Guestbook Service no longer used due to excessive advertising posts.
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